For Parents
How will my child’s information be protected?
The following procedures will be used to protect the confidentiality of your child’s data. The researchers will keep all study records (including any codes to your data) locked in a secure location. Research records will be labeled with a code. The code will be derived from a 3 digit number that reflects how many people have enrolled in the study. A master key that links names and codes will be maintained in a separate and secure location. The master key and the videotapes will be destroyed after they have been coded. All electronic files (e.g., database, spreadsheet, etc.) containing identifiable information will be password protected. Any computer hosting such files will also have password protection to prevent access by unauthorized users. Only the members of the research staff will have access to the passwords. Data that will be shared with others will be coded as described above to help protect your child’s identity. At the conclusion of this study, the researchers may publish their findings. Information will be presented in summary format and your child will not be identified in any publications or presentations.
Can my child stop being in the study and what are my and my child’s rights?
Even if you sign this form, if your child does not feel like participating on the day of participation, he/she does not need to participate. If you agree that your child will be in the study, but later change your mind, you may remove him/her at any time. There are no penalties or consequences of any kind if you or your child decide that you do not want to participate.
The following procedures will be used to protect the confidentiality of your child’s data. The researchers will keep all study records (including any codes to your data) locked in a secure location. Research records will be labeled with a code. The code will be derived from a 3 digit number that reflects how many people have enrolled in the study. A master key that links names and codes will be maintained in a separate and secure location. The master key and the videotapes will be destroyed after they have been coded. All electronic files (e.g., database, spreadsheet, etc.) containing identifiable information will be password protected. Any computer hosting such files will also have password protection to prevent access by unauthorized users. Only the members of the research staff will have access to the passwords. Data that will be shared with others will be coded as described above to help protect your child’s identity. At the conclusion of this study, the researchers may publish their findings. Information will be presented in summary format and your child will not be identified in any publications or presentations.
Can my child stop being in the study and what are my and my child’s rights?
Even if you sign this form, if your child does not feel like participating on the day of participation, he/she does not need to participate. If you agree that your child will be in the study, but later change your mind, you may remove him/her at any time. There are no penalties or consequences of any kind if you or your child decide that you do not want to participate.
